Today was by far the toughest day for Bill and I. I was discharged from the hospital and Rylee was not. We left her in the excellent hands of the NICU staff and came home without her. It was not the joyful trip we home we would have liked, but all-in-all its not that bad. By that I mean, we are hoping to bring her home around dinner time tomorrow. She needs to be monitored until that time due to the timing of her original antibiotic dosage.

We went to feed her dinner, then went to dinner ourselves and then back to give her one more feeding and to tuck her in. She was wide awake when we got there for the 9pm feeding and excited to see us. Again it was sad to leave her behind.

We are trying to find the positives in this and we’ve come up with a big one. We are both going to get uninterrupted sleep tonight for the last time for a very long time. I know that we are both so tired physically and emotionally right now that we are going to sleep as well as Rylee, if not better.

The updates on her tests are positive and continuing to improve. Her color is less yellow and her bilirubin numbers are increasing which is exactly what we want to have happen.

We’ll keep things updated here as we can.

Off to get some sleep before heading out to have breakfast with Rylee.

Thank you so much for your lovely notes and prayers over the past few days.

More pictures of Rylee from her extended hospital stay…